January 16, 2014 HAPPY NEW YEAR!!!
Emily is constantly amazing us!! She has over 100 purposeful words, which is amazing!! She attends a full-time preschool, in an ASD classroom in the public school system. She is receiving ABA, speech therapy, occupational therapy, physical therapy, adaptive physical education, she is being seen by a mobility specialist and a vision specialist all at school. Outside of school she receives 12 hours of ABA therapy at home and continues getting aquatic and physical therapy privately. She started playing soccer last Fall and starts up again this Spring. She’s a busy little girl and works very hard daily. With all these wonderful things happening there are also some not so good happenings. Over this past summer Emily started having an increase in seizure activity and was put on medication. She has also been diagnosed with CVI, cortical visual impairment and has been registered with the Mass Commission for the Blind. Let’s see what this year brings in her complex young life and as always we THANK GOD everyday for the wonderful blessing that is Emily Mae!!
September 20, 2012
It’s been almost a year since Emily started walking. Where has the time gone? Now she’s RUNNING around the house and yard…..and getting into EVERYTHING! But, we’ll take it!
Now, as far as talking goes…..she is making great strides in that department. As of today, 7/6/12, she has about 25 words. Her medical team is of the opinion that Emily will become more verbal as she gets older, and that is a big deal. Can you imagine if your child couldn’t tell you they were hungry or thirsty? Or worse, sick or hurt. Sadly, that’s the case for many of Emmi’s “brothers and sisters” and it’s heartbreaking. To help these kids “find a voice” we have given away iPads thru our Reaching Out and Giving a Voice Giveaway. Families who sell 50 specially made bracelets can get an iPad for their child, as well as a portion of the proceeds are donated for research purposes. As of today, we have given away 4 iPads. This giveaway will run thru the end of the year. To find out how you can help, email us at firstname.lastname@example.org. Help one of Emmi’s brothers and sisters find their voice.